Sue's Myeloma Journey

It is over 12 months since I last had treatment for myeloma. I now have a new consultant, who is a myeloma specialist, and she has decided it is time to start treatment again. The doctors are sure that it was the use of steroids that triggered my breakdown last year, and because of that… Continue reading Treatment starts again…..

In March 2023 I had a bit of a breakdown, and all drug treatment was stopped. In fact, because the steroids were stopped suddenly, that is something that didn’t help how I was feeling at the time, as I have since found out that steroids should never be stopped suddenly….. I was in hospital for… Continue reading A few changes…..

So I am now in the second cycle of treatment (each cycle lasts for 4 weeks). Still no particular side effects, which is good, and I don’t feel tired so far, although I expect I may well do further down the line. I have a blood test each week before receiving the injections, as they… Continue reading Treatment update…..

Tuesday 6th December 2022 First appointment at the O’Connor Haematology Unit at Shrewsbury Hospital at 9.30am. Still all feeling very unreal at this point! Blood test taken first, as blood test results need to be up to a certain spec before any treatment is given, so I just sit in the waiting room and read… Continue reading Treatment starts….

The GP wanted me to have a CT scan, as a chest X-ray showed a small fuzzy area at the top of one lung that they wanted a better look at. The NHS waiting time for a CT scan was very long, so I thought, OK well let’s go private for this one. So I… Continue reading CT scan fiasco